Guidelines
Literature
FAQ
Useful Links
Title
Organization
Please select an organization
Académie nationale de médecine - France
Aetna
American Academy of Pediatrics (AAP)
American College of Medical Genetics (ACMG)
American College of Obstetricians and Gynecologists (The) (ACOG)
American Medical Association (AMA)
American Society of Human Genetics (ASHG)
Association française pour le dépistage et la prévention des handicaps de l'enfa
Association of Public Health Laboratories (APHL)
Association of State and Territorial Health Officers (The) (ASTHO)
Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN)
Australia/ Gouvernemnt - Australian Law Reform Commission
Australia/Government - National Health and Medical Research Council (NHMRC)
Belgian Advisory Committee on Bioethics
British Society for Human Genetics (BSHG)
Canada/ Government Alberta - Health and Wellness
Canadian College of Medical Geneticists (CCMG)
Canadian Institutes of Health Research (CIHR)
Canadian Invitational Workshop
Canadian Paediatric Society (CPS)
Centers for Disease Control and Prevention (CDC)
Centre d'Action Laïque
Comité de liaison en éthique de la recherche de l'Université de Montréal (CLÉRUM
Council for International Organization of Medical Sciences (CIOMS)
Council of Europe
Council of Regional Networks for Genetic Services (CORN)
Council of the European Union
Czech Republic/Government
Dutch Federation of Medical Scientific Societies (FMWV)
Estonia/Government
European Agency for the Evaluation of Medicinal Products (EMEA)
European Commission
European Commission - The Independent Expert Group
European Group on Ethics in Science and New Technologies (European Commission) (
European Parliament (EP)
European Patent Office (EPO)
European Society of Human Genetics (ESHG)
European Society of Human Reproduction and Embryology (ESHRE)
Finland/Government
France/Government
Georgia/Government - Ministry of Health
Gouvernement Québec - Agence d'évaluation des technologies et des modes d'interv
Government of the Hong Kong Special Administrative Region
Health Canada
Health Council of the Netherlands
Human Genetics Commission (HGC)
Human Genetics Society of Australasia (HGSA)
Indian Council of Medical Research (ICMR)
Institut national de santé publique du Québec (INSPQ)
International Atomic Energy Agency
International Federation of Gynecology and Obstetrics (FIGO) - Committee for the
International Huntington Association (IHA)
International Society for Neonatal Screening (ISNS)
Ireland/Government - Department of Health and Children/Commission on Assisted Hu
Italy/Government - National Bioethics Committee
Japan Society of Mass Screening
Joint Committee on Medical Genetics
Luxembourg/Government
March of Dimes
Nami policy research institute
National Academy of Science - Institute of Medicine (IOM)
National Bioethics Advisory Commission (NBAC)
National Consultative Ethics Committee for Health and Life Sciences (CCNE)
National Ethics Committee on Assisted Human Reproduction (NECAHR)
National Human Genome Research Institute (NHGRI)
National Institutes of Health (NIH)
National Society of Genetic Counselors (NSGC)
New York State - Department of Health - Task Force on Life and the Law
New Zealand/Government
NHS Quality Improvement Scotland
NHS Sickle Cell and Thalassaemia Screening Programmes
Norway/Government
Norway/Government - Ministry of Health and Social Affairs
Norwegian University of Science and Technology (NTNU)
Nuffield Council on Bioethics
Ontario / Ombudsman
Organisation for Economic Co-operation and Development (OECD)
Paediatric Society of New Zealand
Panama/Government
PHG Foundation
Portugal/Government
Royal College of Obstetricians and Gynaecologists (RCOG)
Royal College of Pathologists
Royal College of Physicians (RCP)
Royal Commission on Aboriginal Peoples
Science Council of Canada
Singapore/Government
Singapore/Government - Bioethics Advisory Committee (BAC)
Society of Obstetricians and Gynaecologists of Canada (SOGC)
South Africa, Human Genetics, Department of Health
Sweden/Government
Swedish Medical Research Council (MFR)
Swedish National Council on Medical Ethics (SMER)
Swiss National Advisory Commission on Biomedical Ethics (NEK-CNE)
Texas Department of State Health Services
The Nuffield Trust
The President's Council on Bioethics
The Provincial Advisory Committee on New Predictive Genetic Technologies
The Royal College of Midwives (RCM)
The Royal College of Paediatrics and Child Health (RCPCH)
Tri-Council (CIHR, SSHRC and NSERC)
UK Newborn Screening Programme Centre
UNESCO - International Bioethics Committee (IBC)
United Kingdom / Government
United Kingdom / Government - Advisory Committee on Genetic Testing (ACGT)
United Kingdom / Government - Gene Therapy Advisory Committee (GTAC)
United Nations (UN) - General Asssembly
United Nations Educational, Scientific and Cultural Organization (UNESCO)
United States - Department of Health and Human Services (DHHS) - U.S. Preventive
United States Conference of Catholic Bishops (USCCB)
United States/Government
United States/Government - Department of Health, Education, and Welfare - The Na
Victorian Government - Department of Human Services
World Health Organization (WHO)
World Medical Association (WMA)
Key Words
or
and
A-B
C-D
D-E
E-M
N-R
R-W
Access Info/Material
Assent/Dissent
Autonomy
Beneficence
Biobank
Carrier Status
Communication of Results
Community/Population
Compensation for Participation
Confidentiality
Consent
Counseling (general)
Data
Disability
Discrimination
DNA
Duty to recontact
Duty to Warn
Equity
Ethical Review
Ethics Review Board
Family
Gene Therapy
Genetic Screening
Genetic Testing
Justice
Man/Paternity
Minor/Child
Multiplex Testing
Newborn
Pharmacogenomics
Privacy
Psychosocial Aspects
Recruitment
Research
Right not to Know
Right of Withdrawal
Storage
Tissue
Waiver of Consent
Woman/Maternity
Jurisdiction
All
International
Regional
National
Provincial (Canada)
Unknown
Argentina
Australia
Austria
Belgium
Brazil
Canada
Chile
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Guinea
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Italy
Japan
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Latvia
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Luxembourg
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Norway
Panama
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Portugal
Romania
Singapore
Slovakia
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South Africa
Spain
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US Minor Outlying Islands
Vatican City State
Viet Nam
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Year(s) of publication
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1986
1987
1988
1989
1990
1991
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1993
1994
1995
1996
1997
1998
1999
2000
2001
2002
2003
2004
2005
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to
2010
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2008
2007
2006
2005
2004
2003
2002
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2000
1999
1998
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1996
1995
1994
1993
1992
1991
1990
1989
1988
1987
1986
1985
Language
English
French
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